Did You Know?

Women can take steps
before and during
pregnancy to reduce the
risk of having a baby
born with birth defects.
Such steps include taking
a daily multivitamin with
folic acid (400 micrograms),
not smoking, and not
drinking alcohol during
pregnancy.

Possible Complications
Psychological impact
Parents

Giving birth to a baby with a cleft can have a profound psychological impact on the child’s parents. It is common for parents to feel guilty, angry, shocked, helpless or disappointed.

It is important to realise that, in most cases, a cleft cannot be prevented and that you are not to blame. Some parents may worry that they will be unable to bond with a child who has a cleft, but there is no evidence this is the case.

Your cleft care team will be used to supporting parents during the difficult time that can follow the birth of a baby with a cleft. Take this opportunity to express any concerns and worries that you have and ask as many questions as you want.

Some parents find that learning as much as they can about the condition helps them to cope better. Also, talking to other parents in similar circumstances can help reduce feelings of anxiety and isolation.

Children

A cleft can also have a psychological impact on a child, particularly as they get older and begin to mix with other children.

It is recommended that you are entirely open about the nature of your child's condition as soon as they are old enough to understand. Treat it as a normal topic of conversation and not a guilty secret that nobody should talk about.

It is best to be realistic about the possible length of treatment that your child might require and its likely outcomes. Ongoing treatment lasting for up to 20 years is usually required for most children with a cleft. Although this can be upsetting, giving your child false hope and unrealistic expectations could be more damaging in the long run.

You can also help strengthen your child's independence by involving them in the decision-making process about their treatment and their life in general.

Tooth decay

Children with clefts are more likely to develop tooth decay. This is partly due to crowding of the teeth, which makes it more difficult for them to keep their teeth clean.

The advice below may help reduce your child’s risk of developing tooth decay.

  • Your child should have a dental check-up at least once every six months.
  • Encourage your child to brush their teeth after every main meal. When they are at school, you could put a small tube of toothpaste and a toothbrush in their lunchbox.
  • Using a fluoride mouthwash once a day will help protect your child’s teeth against decay.
  • Limit the amount of sweet and sticky food and drink your child eats and drinks because they can increase the risk of tooth decay.
  • Limit the amount of starchy foods that your child eats, such as crisps, white bread and biscuits.
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